Having a partner with dementia can have a profound impact on both of you. Indeed, it takes a special kind of patience and understanding to deal with the challenges of this disease. For example, one of the participants of the Dementia and (N)u course recently said, “I come here for a course in patience. Where do I get that from?”. Need practical tips? Here are five tips for you on patience and how you can (re)find it in difficult moments.
1. Learn about dementia and set realistic expectations
It is crucial to learn about the symptoms and progression of dementia. By gaining knowledge about the disease, you can better understand where it comes from and thus respond to your partner's changes in behavior and abilities. In addition, set realistic expectations for yourself and your partner. “Expect nothing, appreciate more.” Understand that there will be good days and not so good days and they will alternate. Shift from “Can you do this?” to “Do what you can.”
2. How do you keep structure?
A consistent daily routine can be a great help to someone with dementia. It can provide predictability, reducing confusion and anxiety. Consider set times for meals, activities and rest. This structure can give your partner a sense of security and stability. You can also add supports in the environment, such as a dementia clock or a Bbrain for calendar reminders.
3. Adapt your communication
Use simple, clear sentences and give one instruction or ask one question at a time. By waiting for a response, repeating your question or rephrasing a question, you help the other person process the information and come up with their own answer. Nonverbal cues such as eye contact, a clue or contact with a hand can also help direct attention.
4. Value
The condition of dementia changes a lot in your lives. This can bring a sense of loss or missing. You may experience warm moments in contact, but also face new situations, tension or repetition. Try to focus on “what works.” Appreciation can increase self-confidence. Avoid confrontations and try to resolve conflicts calmly or walk away for a while. Having to be so patient can lead to frustration. For this, it can be nice to have your own outlet. This can be a support contact, a hobby or a sport in which you can expend your energy. If you want to think about this further, we would like to think with you. Possibly the workshops Mantelzorg van A tot Z are something for you.
5. Self-care and Support
Take care of yourself because your well-being is just as important. Take regular breaks and seek support when you need it. This can be done by contacting the dementia case manager or by joining the Dementia and (N)u course group. Sharing experiences with others in similar situations can offer much support and insight.
Looking for more tools in dealing with your partner? Visit www.mantelzorgoosterhout.nl/agenda for an overview of activities for family caregivers, such as courses and Alzheimer's cafes or call us for personal contact! To do so, call the Surplus telephone number: T 0162-748600 and ask for informal care.
